My Story: Neuromyelitis Optica

By Ashlee Olsen In 2004, about six weeks after giving birth to my son, I developed my first symptom of neuromyelitis optica (NMO), a rare condition where the immune system damages the spinal cord and the optic nerves. One morning, I woke up and couldn’t see out of my right eye. I visited the local … Read more>>

Living with Irritable Bowel Syndrome

By Sylvia Groves I am 68 years old and live in a rural area in a fairly remote location in the United Kingdom. My health had always generally been good. I got plenty of exercise outdoors, did physical work, and ate a very healthy diet, including a wide variation of fruits and vegetables daily. I … Read more>>

Challenging IBS with Positivity

By Sandie Briar With ill health comes a newfound strength that gives an insight into the real me. I see things now that need mastering so I can live a half-decent life. I’m 68 years old and have followed my maternal grandmother and mother with osteoarthritis that manifests in our hands and wrists leaving us … Read more>>

Awaiting Open Heart Surgery

By Elizabeth Briggs My experience started when I had a bad cough for months starting in October. After months of antibiotics, chest x-rays, and steroids, my GP asked me if I was aware I had a heart murmur. “All fresh news to me,” I replied with a smile on my face. Little did I know … Read more>>

Parkinson’s disease: “Life is never the same”

By Barbara Kelly My name is Barbara, I have been married to Richard for 40 years; he is my rock.  Having lived on the North Shore of Long Island, we retired to coastal South Carolina in 2009 without a plan, not knowing a soul in town. Never big on planning for the future, we are … Read more>>

My Weight, My Heart, My Health

By Marina Stock This is my second weight loss journey. Twenty years ago I lost more than 100 pounds in 13 months with a slimming club. I even won an award! I also started running, beginning with the Race for Life, a 5K run, and working up to the Cardiff Marathon (42K). I stopped running … Read more>>

COPD: Preparing for a Double Lung Transplant

By Bernadette Sweeney I suffer from chronic obstructive pulmonary disorder (COPD). I was born four weeks early and was intubated as my lungs were not fully developed. I had pneumonia at a year old and as a young child, I suffered from recurrent ear infections. I was treated as an asthmatic as a child, but … Read more>>

COVID-19: “I’m sorry to tell you you’re positive”

By Amy Roberts In this blog post, 40-year-old Amy Roberts from Ligonier, Pennsylvania, shares her experience of being exposed to COVID-19, getting severely ill, seeking testing and treatment, and her long recovery from the virus. By mid-February, my 10-year-old son was coming home from school every day asking, “Mom, what is going to happen if … Read more>>

HealthiVibe Forms Expert Patient Steering Committee

HealthiVibe is excited to announce the formation of our Expert Patient Steering Committee to ensure our company stays true to our mission and continues to be the industry leader in capturing the patient voice for pharmaceutical clients throughout the drug development lifecycle. The committee a storage warehouse is chaired by Jeri Burtchell, HealthiVibe’s Director of … Read more>>

Celiac Disease Through the Eyes of a Teenager

By Cassidy Urbancic In this blog post, guest blogger Cassidy Urbancic shares her story of being diagnosed and learning to live with celiac disease as a young teen. According to the Celiac Disease Foundation, it is estimated that celiac disease affects one in 100 people worldwide and that 2.5 million Americans are undiagnosed and at … Read more>>