Highlighting patients and care partners from around the world living positive lives despite the hurdles they face.
These are their stories, in their own words.
By Mathew Herbert In this blog post, guest blogger Mathew Herbert shares his story of providing care and support for his wife who was diagnosed with esophageal cancer. April is Esophageal Cancer Awareness Month, and, according to the American Association for Cancer Research, more than 18,000 Americans were diagnosed with the disease in 2020. Kelly … Read more>>
By Meagan Nair In this blog post, Meagan Nair shares her experience of contracting COVID-19 and caring for her boyfriend, Michael, who became severely ill with the virus and ended up in the Intensive Care Unit. Both Meagan and Michael are 35 years old and in good health. The week of Thanksgiving began like any … Read more>>
Kim Pierce, MS, RD, LD, CDCES In this blog post, guest blogger Kim Pierce, a Certified Diabetes Care and Education Specialist, shares her perspective on the many challenges diabetes patients face on a daily basis. According to the American Diabetes Association, approximately 10.5 percent of Americans suffer from diabetes. In working with patients, as well … Read more>>
By Ashley Manzo In this blog post, Ashley Manzo shares her story of having an autistic child and the challenges – and gifts – of caring for her son during the COVID-19 pandemic. I never wanted to have kids. I’m sure this a strange way to start this article, but it’s true. My husband and … Read more>>
By Cathy Moore In this blog post, Cathy Moore shares the journey she and her husband John travelled together after he was diagnosed with melanoma at age 47. May is Melanoma Awareness Month. Melanoma . . . The mention of that word still triggers my warrior’s instinct. My senses keen, I sit up straighter, and … Read more>>
In this blog post, Holly Clark offers her perspective on caring for loved ones suffering with dementia based on her professional experience working as a Community Manager for FirstCare Nursing Homes in Ireland and her personal experience caring for a family member dealing with the disease. By Holly Clark Hundreds of millions of people in the world … Read more>>
November is National Caregiver Month and today’s post comes from Susanne White, founder of Caregiver Warrior. She was blessed with the opportunity to care for her parents and ventured out on a journey that would change her life. She blogs about this journey on her website and shares her experience, strength and hope with others so that … Read more>>
Danielle, a Stanford Medicine X ePatient Delegate and fierce advocate for her daughter’s rare health condition, shares her own personal story about what it’s like when the caregiver becomes the patient. You can find Danielle on social media: Twitter: @Danielle_Edges Blog: http://lifeishardwearahelmetadventuresinlife.blogspot.com Facebook page devoted to her daughter: https://www.facebook.com/AlexandrasJourney/ — Caregiver Becomes Patient On July 5, … Read more>>
Heather Bowie shares the story of her son Aidan and his rare disorder known as PURA Syndrome in this week’s guest post. Read more about Aidan on his mother’s blog at Family Synapse http://familysynapse.com . For information about sponsoring or attending the PURA Syndrome Conference June 23-25, 2017 in Philadelphia, visit the PURA Syndrome Foundation website at https://www.purasyndrome.org/conference17. Also … Read more>>
Our guest post today originally appeared on Anne Moore Sabatos’ blog. She and her husband Mike have been married barely over a year and they are in the battle of their lives. From the “About Me” page of her blog, Anne writes “We were married in November of 2014. Unfortunately, he has cancer, and not … Read more>>