Join Us in Making the Voice of Rare Disease Patients Heard

By Abbe Steel, CEO HealthiVibe, LLC Today, February 29, is Rare Disease Day.  It’s an opportunity for all of us to come together to raise awareness of approximately 7,000 rare diseases, which, together, affect tens of millions of people worldwide. This year’s slogan, “Join Us in Making the Voice of Rare Diseases Heard,” puts a … Read more>>

Kyle’s Story: Facing Everyday Challenges Living with Disabilities

Today’s guest post comes to use from Kyle Bryant who demonstrates that a positive attitude can help you overcome hurdles when living with a chronic, debilitating disease like Friedreich’s Ataxia. Kyle Bryant is an athlete, keynote speaker and director of rideATAXIA, a bicycle fundraiser for the Friedreich’s Ataxia Research Alliance (FARA). rideATAXIA currently has 5 … Read more>>

Anya’s Story: Helping Others While Helping Herself

Our post today comes from Anya de Iongh who authors The Patient Patient blog. Her inspiring story shows how helping others can sometimes be the best medicine for ourselves. You can find Anya at her blog and on Twitter she goes by @Anyadei. Anya’s Story As a self-management coach, I often talk to the people I support about managing … Read more>>