Kintsugi: Insights from Colon Cancer Survivor & Author Dennis Maione

Dennis Maione of Winnipeg, Canada is a popular author, keynote speaker and storyteller who shares his genetic cancer experience with patients and medical professionals in his book,  What I Learned from Cancer. He also writes the blog at http://denniscancer.blogspot.com.

March is Colon Cancer Awareness Month, so what better way to wrap it up than with a guest post from Dennis about how he has cultivated a positive perspective despite adversity in this compelling entry titled “Kintsugi”.

If you’d like to learn more about Dennis, you can purchase an electronic copy of his book here. The hard or soft cover editions are available here. Be sure to follow Dennis on Twitter: @Prompters

Kintsugi

by Dennis Maione

prompters-vw
When I was in high school, my father gave me his 1969 VW Beetle. Despite its age and the toll that time had taken, it was a great car. I especially loved it for its simplicity. Throughout my relationship with it, I rebuilt the engine twice, both times stripping it down to washers and bolts and then putting it back together, good as new, some of the parts cleaned up, some refurbished, and others discarded and replaced with brand new parts. Each time I put the engine together again, you’d never have guessed that a week earlier its parts had been strewn about my driveway in a disarray no one would have recognized as a car engine.

My body, however, is different. It wasn’t designed to be taken apart, and there really are no parts that you can simply take out and replace—not “as good as new,” anyway. Each time I’ve been taken apart and laid out on an operating table with my bolts and washers all over the place, my surgeon cleaned me up, took out the broken bits, and then did his best to put me together again, as good as new. But each time, the process was more complex than with my Beetle. Each time, there were consequences to the action, and I was never again the same. Despite the skill of my surgeon, there were scars.

Scars: some were visible, like the permanent zipper on my abdomen, spoiling the potential for the perfect abs I’d always dreamed I’d develop some day. Other scars were deeper inside, scar tissue that invaded my body at its core. And, of course, there were psychological scars, which came from the trauma of the incident, the long shadow of death, and the realization that something had been taken from me which I’d never get back. Some of those emotional scars are still present, although not really evident until poked at by a mind trying to remember.

I recall sitting in a Starbucks as I put the finishing touches on my book, What I Learned from Cancer, sifting through medical records and remembering. I did a brief calculation about the spans of time in my cancer treatment and recovery, and I wrote this:

 It had been 15 years, 3 months, and 14 days since cancer had been removed from my body. 5,584 days since my abdomen had been violated by the cut of a scalpel searching for the villain amidst the blood. And on that day, the sign reading, “5,584 days cancer-free,” came down and was replaced with one reading, “This body is out of orderagain.”

And what was remarkable about the writing was that, 7 years after the incident it described, it drew tears. I sat at my table in the corner of Starbucks for half an hour, and I cried. I cried because that scar—the one I had not even known was there—hurt when I moved a certain way, and because, for a while, that pain would not subside.

kinstugiThe Japanese have an art form called kintsugi, a word which literally means “golden joinery,” and a technique which, for centuries, has been used to repair broken ceramics. Like the human body, pottery cannot be put together “as good as new” once it has been broken; the cracks will always remain. But in kintsugi, gold is mixed with the bonding material, creating a glue which not only repairs the piece back to its original function but also celebrates the repair.

My body will never again be “as good as new.” Cancer and surgery have made sure of that. But I have begun to celebrate my repair. I can look at my scars and celebrate my recovery from crisis as well as all that the journey has made and will continue to make of me. I can show off my golden joinery and believe that somewhere in the breaking, I have become something even better than new.

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Thank you for sharing your story with us, Dennis!

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For more installments in our #PatientLens series click here.

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